| Phantom Tea | October 10, 2001 |
| October, Annual Event
Invite your friends to a Phantom Tea
So many people have expressed a wish to help IRSA raise money, yet were overwhelmed at the thought of anything "really big". Most fundraisers take an enormous effort of time and energy - and most of us find those at a premium. But those who have tried a Phantom Tea have been delighted at the response from their friends, family, co-workers, and neighbors.
A Phantom Tea is a substitute for an actual fundraising event, be it a dance, auction, bowling or golf benefit. No one has to get dressed up to go to it, find a sitter or sit through long speeches. In the comfort of their own homes, your friends will pull out the tea bag you sent in your invitation (printed by IRSA) and fill out a check to IRSA for the love of your daughter. IRSA will send you a list of donors and thank you cards. We even supply the pre-stamped envelopes and the tea bags!
We hope you will join us in towns and cities all over the world as we take a cup of tea and toast the cure for Rett syndrome. Our official date is October 10. We hope to have a very large group of people around the world sipping a cup of tea, toasting your daughter and wishing for a cure for Rett syndrome. Maybe some of them will even feel inclined to send up a prayer, too. The Tea is a wonderful way to educate friends and family and raise much needed funds for IRSA's programs. We count on you to make it a great success. Thanks!
Call IRSA at 1-800-818-RETT for more information.
Next phantom tea ... Oct 8, 2000.
Donations to our 1995 Tea totalled over $110,000.
Donations to our 1996 Tea totalled over $135,500.
Donations to our 1997 Tea totalled over $154,200.
Donations to our 1998 Tea totalled over $169,700.
Donations to our 1999 Tea totalled over $187,663.
Be with us in the Spirit to Benefit
The International Rett Syndrome AssociationOur Hearts have been touched by an Angel on earth
Whose gentle sweet innocence breathes life’s true worth
On tiptoes, her spirit has danced on our souls
our love for this child is more precious than gold
If miracles were woven from the magic of dreams
We’d marvel at visions of Wonderful scenes
In a future that held forth a much brighter day
Our dear, precious angels would skip, sing, and play
It takes lots of friends to make dreams come true
And that’s why I’ve sent this request to you!!
Please brew up some tea, take a sip and then pause
Send your donation to this worthy cause
The funds that are raised will help more than you knowAnd it will rest in our hearts for the goodness you show
With your great support and care we are sure
To fine new answers for treatment and cure.
*The only thing you will need is a Tea Bag and a Cup.
When: Oct. 10, 2001
Place: at your home sweet home.
Time: any time that suite you
RSVP: Send Donations to the IRSA
at
IRSA
9121 Piscataway Rd. #2B
Clinton, MD 20735
~
GOD gave me a daughter for me to love
He smiled and said I sent her to you from above
She is innocent, as you can see
And to the whole world, that is the way she will always be
I made her special just for you
To love and cherish her whole life through
So when you wrap her in your arms
I know that no one can bring her harm
And when you see her smile so bright
Her little eyes light up the night
She knows me as we meet and talk
And in her dreams we go for walks
She tells me of your love so true
And thanks me for a special mom like you
I know you love her as I do
And remember a lot of other people ....
Love this angel to.
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| October Awareness Month | The Month of October is Rett Syndrome Awareness Month |
| October - Rett Syndrome Awareness Month
Annual event
We hope you will take a moment during this awareness month to educate someone who never heard of Rett syndrome.
HERE ARE SOME DYNAMIC IDEAS!
Tack up fliers for others to see. Post them where everyone can see: your bank, grocery store, place of business, school, church.
We've made this easy - click here for fabulous fliers featuring Julia Roberts.
Invite friends and family to watch Silent Angels October 1 and October 7 on Discovery Health
Have a private showing of the film at your daughter’s school or program (get your copy here).
Order and wear your ASK ME ABOUT RETT SYNDROME tee shirt. Special price of $6 + postage and handling now through the month of October (order here).
Designate IRSA to receive funds from the Combined Health Appeal (formerly CFC, Member Agency #0528) or as a write-in to receive funds from the United Way
Call the local paper to see if they will do a story about your daughter to help enlighten others. Give information to your local library. Speak to your PTA, social club, local high school or college classes. Call or write the host of your favorite talk show and suggest a story on RS.
Elevate funds for the RS cause. Hold a fund-raiser, as simple or as elegant as you wish. From bake sales to gala events, every little bit helps a lot. Participate in the Phantom Tea, hold a car wash, put out a canister. sponsor a benefit dance, or create your own new idea.
Tap your resources. Do you know someone who could help with awareness or fund-raising? Have any contacts with business or government legislators? Have access to television, radio or newspaper coverage? Know someone famous or well known?
Order "What is RS" cards and include them in cards and letters to friends. ($2.00 for 25 cards).
To obtain a press kit or to inquire about banners, displays or fliers, call us today at 1-800-818-RETT.
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| In Loving Memory ...
Press Release July 16, 2001
CLINTON, MD, July 16, 2001. The International Rett Syndrome Association very deeply regrets the sudden and unexpected death of Abigail Brodsky, 10, on June 30, 2001, in Brooklyn, NY.
Abigail was the sparkling curly-haired child who won the heart of America's superstar, Julia Roberts. The two appeared together in the Discovery Health production of Silent Angels: The Rett Syndrome Story, which continues to air through 2001 on the Discovery Health channel.
Silent Angels is a moving documentary with stories of courageous families who strive to find answers to Rett syndrome, a debilitating condition which is found primarily in girls. All it took was one smile from Abigail, and Julia Roberts joined the campaign for increased understanding of this long-overlooked disorder which is often misdiagnosed as autism or cerebral palsy.
Julia Roberts will appear on the Today Show with Matt Lauer on Tuesday, July 17, to discuss her part in the Silent Angels film and the many ways little Abigail touched her life forever.
Silent Angels: The Rett Syndrome Story will air on Discovery Health on Tuesday, July 17, at 8:00pm (ET).
For information about Rett syndrome and the association's work to advance research, advocacy and family support services, or if you would like to volunteer or make a contribution, please call the IRSA at 1-800-818-RETT.
For more information:
Kathy Hunter
Parent, Founder & President, IRSA
1-800-818-RETT
Alan Percy, M.D.
The Rett Center for Excellence
University of Alabama at Birmingham
205-934-4974
Daniel Glaze, M.D.
The Blue Bird Circle Rett Center
Baylor College of Medicine
713-798-7388
Carolyn Schanen, M.D.
UCLA
310-794-9751
Sakkubai Naidu, M.D.
The Rett Center
Kennedy Krieger Research Institute
410-502-9409
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