Rett Syndrome Research Foundation  RSRF- Rett Syndrome Research Foundiation
The Rett Syndrome Research Foundation (RSRF, or the Foundation) was created in the fall of 1999 by six parents of girls with Rett Syndrome. Their vision is to find a treatment and cure for Rett Syndrome, a devastating neurological disorder that deprives girls of communication and motor skills.
The non-profit 501(c)(3) foundation is raising money to promote and accelerate biomedical research on Rett Syndrome, seeking to capitalize on the recent discovery of the gene mutations responsible for the condition. The founders hope to ensure a brighter future for all girls and women with the disorder.
All research proposals seeking funding from the Foundation are reviewed by its distinguished Scientific Advisory Board, under the chairmanship of Dr. Michael Hayden.
With leading scientists serving as advisers, a group of strongly motivated founders, and a generous start-up grant, the Rett Syndrome Research Foundation intends to press aggressively for progress against a little-known but devastating disorder that has damaged thousands of lives around the world.
Our Vision
Please visit them at their web site at:
http://www.rsrf.org
or click on the pitcure above
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